and I really haven't done much. It's dealing with Alzheimer's day in and day out. Do you realize that family and friends believe that just because a person has Alzheimers they can't be visitied or talked to?
The fact is, they are just as normal as they ever were, in that moment of time they are spending with you. They love hugs, talk about the past, and may repeat themselves several times. Now, I realize that there are several stages of Alzheimers, each one varies, but with the medications they have now and with patience the Alzheimers patient still enjoys socializing.
Alzheimers patients can be shut-ins due to age, walking disabilities, or just for the fact if they leave the enviroment they are in they can become disoriented and it can set their thinking back and they wonder when they "moved".
However, they don't stop smiling, they don't stop loving, they don't stop caring. They still want to Help in daily living and be given a job to do. They are old and tired. Do they like company and folks to talk to them? YES, they are not stupid or crazy. Their memory is slowed down. That's all. Short term memory. Remember when you use to tell someone who looked at you funny, Take a picture, it lasts longer. Well,,,it's true. Taking a picture of yourself with the Alzheimers patient is a good way for the "Caregiver" to keep a journal and be able to discuss your visit once you have left. They may not remember when they saw you, but you do stay in their mind. When they mention , "I haven't seen so and so for so long, the picture journal comes in handy.
Caregivers need the respite too. When nothing new happens, the same questions can nearly drive the caregiver out of their minds. Family can be so helpful in this area. Coming and taking the Alzheimers patient for a drive or just out to the drive-thru for a coke or coffee gives the Caregiver and the Alzheimer's patient a break. Even if it's only for an hour. Phone calls are great too. Hi Grandma, How are you? I have a new job. I remember when I was 5 and you came to my party. Or how about, I love you, Happy Birthday.
Can you tell this Caregiver is on fire? I'm near burn out after 2 1/2 years of full time care for Mom. If Jaime and Kasey did not live with me, I would be out of my mind. No one comes to visit except my sister once in a while and my nephew David has been here twice. No one ever offers to come and stay and I can have a night out with a friend or an afternoon lunch. If I want help, I always have to ask for it. My dear sweet friend and sister, Jill, will call my Mom long distance so I have prep time in the kitchen to make dinner or just be able to clean something up in the house, while she chats with Mom about farm chickens, children, church.
And don't get me started on mail. The woman longs to get personal mail. Who doesn't like to get a letter!
Well enough. I'm totally and physcially exhausted. What happens if I burn out? Who takes care of Mom then? Well enough. Just yesterday was Mom's birthday and I'm ashamed of my family. I stay close to tears most of the time. Carolyn stopped by on her way out of town to bring Mom flowers and cake and ice cream. Oldest granchild of 6 is 35. Haven't seen or heard from any of them except Jaime who lives here with us and Vicki who lives with her mother.
Funny, in all those years, Mema never forgot a birthday or present or missed a party.
Well enough, now that I have blown steam it's time for a family intervention.
April 21, 2021
3 years ago
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